Pancreatic cancer it’s the deadliest cancer, yet knowledge of the disease is alarmingly low. One and five year survival rates for pancreatic cancer are lower than all other digestive cancers. Symptoms can often be hard to identify, making it difficult to diagnose early and in time for surgery.
UEG and its partners are working towards better pancreatic cancer outcomes, including advocacy for an increase in research funding and the delivery of a pan-European standard of care.
Our Report 'Pancreatic Cancer Across Europe - Taking a united stand' provides a concise overview on the state of pancreatic cancer in Europe:
- Pancreatic cancer ranks seventh in terms of incidence rates, with 100,000 new cases every year.
- Incidence appears to be highest in Latvia, Hungary, Germany and Italy.
- Incidence is lowest in Cyprus and Ireland.
Disease progression and survival rates
- Pancreatic cancer has the lowest survival rate of all cancers in the EU.
- Just 3% of patients diagnosed with pancreatic cancer survive for five years and it is the only cancer that has not seen improvement in survival in 50 years.
Pancreatic Cancer Declaration - Pancreatic Cancer Europe
A declaration on Pancreatic Cancer calling for concerted action across Europe by 2020. Including 5 key steps that must be taken to improve patient outcomes.
GP Advice Leaflet - Pancreatic Cancer Europe
A quick guide for GPs on when to refer patients to pancreatic cancer specialists.
Pancreatic Cancer White Paper - EUPancreas
The Pancreatic Cancer White Paper was launched by the EAMP in collaboration with EUPancreas. It is a direct appeal to policymakers, legislators, and regulators to encourage innovation, to enhance prevention, and to broaden access to treatment. It also calls on all stakeholders to work more closely together to reduce the burden of pancreatic cancer on patients and on society.
Understanding Pancreatic Cancer Booklets - Pancreatic Cancer Action
A range of short advice guides for patients, developed and reviewed by medical professionals and people who have been affected by pancreatic cancer. Please click each one to view.
Global Patient Organisations
Through global collaboration we raise awareness of pancreatic cancer, and by coming together we strengthen the efforts of all our member organisations.
European Patient and Stakeholder Organisations
Pancreatic Cancer Europe is a European multi-stakeholder platform which aims at bringing together experts from all over Europe including academics, physicians, politicians, patient groups, journalists and industry with a common interest and willingness to improve care for patients with pancreatic cancer.
EUPancreas is a European network that aims to unite pancreas cancer research groups across Europe and provides an innovative and unique platform for collaborating and sharing information, ideas and experience. The group interacts with patient organisations and other key European stakeholders to better patient care.
National Patient Organisations
Bulgaria: APOZ, National Association of Patients with Oncological Diseases
Cyprus: KHYD, Help those with Cancer
Cyprus Association of Cancer Patients and Friends
Czech Republic: League Against Cancer Prague
Estonia: Estonian Cancer Society
France: Fondation ARCAD, Aide et Recherche en Cancérologie Digestive
Germany: Heidelberg European Pancreas Center
Greece: "KEFI"" Association of Cancer Patients of Athens"
Hungary: Recovering together
Ireland: Irish Cancer Society
Italy: Italian Federation of Volunteer-based cancer organisations (FAVO)
Italy: Istituto Pancreas Verona
Latvia: Europacolon Latvia
Lithuania: Lithuanian Cancer Patient Coalition (POLA)
Poland: Polish Cancer Patient Coalition (PKOPO)
Portugal: EuropaColon Portugal
Slovakia: EuropaColon Slovakia
Slovenia: Cancer Patients Association of Slovenia
Spain: GEPAC, Grupo Espanol de Pacientes con Cancer
Sweden: Gastrocentrum, Karolinska University Hospital
Romania: Romanian Pancreatic Club
United Kingdom: Pancreatic Cancer Action
United Kingdom: Pancreatic Cancer UK
- UEG Brussels Office
- T: +32 4719 133 13
- UEG Brussels Office
- M: +32 4777 649 34