Pancreatic Cancer

About Pancreatic cancer

Pancreatic cancer is responsible for the second highest number of deaths due to digestive cancers. It has the lowest rate of survival amongst all cancers across Europe, yet knowledge of the disease is alarmingly low. Symptoms can often be hard to identify, making it difficult to diagnose early and in time for surgery.

Together with Digestive Cancers Europe and Pancreatic Cancer Europe, we have issued joint policy solutions for lifting the neglected burden associated with gastric and pancreatic cancer.

Read joint policy solutions

Read position paper

Pancreatic cancer infographics

  • Useful resources
  • Patient Organisations
Useful resources

Joint Position Paper on Pancreatic Cancer (2024)

This position paper, produced by Pancreatic Cancer Europe (PCE) in collaboration with Cancer Patients Europe (CPE), Digestive Cancer Europe (DiCE), European Pancreatic Club (EPC) and UEG, highlights the alarming trends related to pancreatic cancer in Europe. It outlines actionable solutions to combat pancreatic cancer, which remains the third leading cause of cancer deaths in Europe.

Read position paper

Digestive Cancers Europe (DiCE): Pancreatic Cancer White Paper (2022) 

A white paper from the perspectives of patients with pancreatic cancer calling for urgent action in 10 key areas. 

Read position paper 

Digestive Cancers Europe (DiCE): The Costs of Pancreatic Cancer (2021) 

This factsheet provides a broad picture of the economic burden of pancreatic cancer and is based on the Swedish Institute for Health Economics’ (IHE) study on the Costs of Cancers of the Digestive System. 

Read factsheet 

Bringing pancreatic cancer to the 21st century

Review-article in the UEG Journal on how to prevent, detect, and treat the disease earlier and better.

Read article

Patient Organisations

Global Patient Organisations

World Pancreatic Cancer Coalition

Through global collaboration we raise awareness of pancreatic cancer, and by coming together we strengthen the efforts of all our member organisations.


Digestive Cancers Europe 

Digestive Cancers Europe (DiCE) is the European umbrella organisation of a large group of national Members representing patients with digestive cancer. Their mission is to contribute to early diagnosis and decreased mortality from digestive cancers and to increase overall survival and quality of life. 

European Patient and Stakeholder Organisations

Pancreatic Cancer Europe

Pancreatic Cancer Europe is a European multi-stakeholder platform which aims at bringing together experts from all over Europe including academics, physicians, politicians, patient groups, journalists and industry with a common interest and willingness to improve care for patients with pancreatic cancer.


National Patient Organisations

Bulgaria: APOZ, National Association of Patients with Oncological Diseases 
Cyprus Association of Cancer Patients and Friends
Czech Republic: League Against Cancer Prague
Estonia: Estonian Cancer Society
France: Fondation ARCAD, Aide et Recherche en Cancérologie Digestive
Germany: Heidelberg European Pancreas Center
Greece: "KEFI"" Association of Cancer Patients of Athens"
Hungary: Recovering together
Ireland: Irish Cancer Society
Italy: Italian Federation of Volunteer-based cancer organisations (FAVO)
Italy: Istituto Pancreas Verona
Latvia: Europacolon Latvia
Lithuania: Lithuanian Cancer Patient Coalition (POLA)
Poland: Polish Cancer Patient Coalition (PKOPO)
Portugal: EuropaColon Portugal
Slovakia: EuropaColon Slovakia
Slovenia: Cancer Patients Association of Slovenia
Spain: GEPAC, Grupo Espanol de Pacientes con Cancer
Sweden: Gastrocentrum, Karolinska University Hospital
Romania: Romanian Pancreatic Club
United Kingdom: Pancreatic Cancer Action
United Kingdom: Pancreatic Cancer UK


Public Affairs & Advocacy Management
Andreea Botos