Inflammatory Bowel Disease (IBD)

About IBD

Inflammatory bowel disease represents a group of chronic intestinal disorders that cause continued inflammation of the digestive tract. The two most common diseases that fall under the IBD umbrella are Crohn’s disease and ulcerative colitis. They are remitting and relapsing in nature and living with an IBD can have a severe impact on a patient’s life, causing high disability. IBD is often diagnosed at an early age and has increased in prevalence across Europe in recent decades. 

Do you want to learn more about the most challenging aspects of living with IBD and the unmet medical needs in IBD management? Read the article by our Rising Star Awardee Joana Torres. 

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IBD infographics

  • Useful resources
  • Patient organisations
Useful resources

EFCCA Magazine: IBD has no age (2023) 
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ECCO Guidelines on Sexuality, Fertility, Pregnacy, and Lactation (2023) 
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ECCO Guidelines on Therapeutics in Ulcerative Colitis: Medical Treatment (2022) 
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ECCO Guidelines on Therapeutics in Ulcerative Colitis: Surgical Treatment (2022) 
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ECCO Guidelines on the Prevention, Diagnosis, and Management of Infections in IBD (2021) 
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The Medical Management of Paediatric Crohn's Disease: an ECCO-ESPGHAN Guideline Update (2021) 
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Pregnancy and IBD: An Interview with Dr. Uma Mahadevan (2020)
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Patient organisations

European Patient Organisations


The European Federation of Crohn's & Ulcerative Colitis Associations is an umbrella organisation representing 33 national patients’ associations. EFCCA aims to work to improve life for people with IBD and give them a louder voice and higher visibility across Europe and beyond. 

T: @efcca


National Patient Organisations

ÖMCCV - Österreichische Morbus Crohn / Colitis Ulcerosa Vereinigung (Austria)
Fundación Mas Vida de Crohn & Colitis Ulcerosa (Argentina)
CCV-vzw - Crohn en Colitis Ulcerosa vereniging vzw (Belgium)
RCUH - Association Crohn-RCUH (Belgium)
BCUCA - Bulgarian Crohn’s and Ulcerative Colitis Association (Bulgaria)
HUCUK - Hrvatsko udruzenje za Crohnovu bolest i ulcerozni colitis (Croatia)
CYCCA - Pancyprian Association of Ulcerative Colitis and Crohn’s (Cyprus)
IBD Patients zs (Czech Republic)
CCF - Colitis - crohn foreningen (Denmark)
CCAFIN - Crohn ja colitis ry (Finland)
AFA - Association françois aupetit – AFA (France)
DCCV.e.V. - Deutsche Morbus Crohn / Colitis Ulcerosa Vereinigung  (Germany)
HELLESCC - Hellenic Society of Crohn´s Disease and Ulcerative Colitis Patients (Greece)
MCCBE - Magyarországi crohn-colitises betegek egyesülete (Hungary)
CCU-SAMTÖKIN - Crohn’s og colitis ulcerosa samtökin (Iceland)
ISCC - Irish Society for Colitis and Crohn’s disease (Ireland)
AMICI - Associazione per le malattie infiammatorie croniche dell’ intestine (Italy)
The Israel Foundation for Crohn’s Disease and Ulcerative Colitis (Israel)
MACC - Malta Association of Crohn’s and Colitis (Malta)
The Crohn’s and Colitis New Zealand Charitable Trust (New Zealand)
LMF - Landsforeningen mot fordøyelsessykdommer (Norway)
J-elita - Polskie Towarzystwo Wspierania Osób z Nieswoistymi Zapaleniami Jelita (Poland)
A.P.D.I. - associaçao portuguesa da doença inflamatória do intestine (Portugal)
ASPIIR - ASociatia Persoanelor cu boli Iflamatorii din Romania (Romania)
UKUKS - Udruzenje obolelih od Kronove bolesti i ulceroznog kolitisa Srbije (Serbia)
SCC - Slovak Crohn Club (Slovakia)
KVCB - Društvo za kronicno vnetno crevesno bolezen (Slovenia)
ACCU - Asociación de enfermos de Crohn y Colitis Ulcerosa de España (Spain)
Mag- och tarmförbundet (Sweden)
SMCCV - Schweizerische Morbus Crohn / Colitis Ulcerosa Vereinigung (Switzerland)
Crohn's and Colitis UK (UK)

Public Affairs & Advocacy Management
Anna Carboni