EXPLORE PART B: A PROSPECTIVE, INTERNATIONAL, LONG-TERM NATURAL HISTORY STUDY OF PATIENTS WITH ACUTE HEPATIC PORPHYRIA WITH RECURRENT SYMPTOMS

David Cassiman  1     Raili Kauppinen  2     Susana Monroy  3     Ming-Jen Lee  4     Herbert L. Bonkovsky  5     Manish Thapar  6     Encarna Guillén-Navarro  7     Anna-Elisabeth Minder  8     Zhaowei Hua  9     Marianne T Sweetser  9     Aneta Ivanova  10    
1 University Hospital Leuven, Leuven, Belgium
2 University Hospital of Helsinki, Helsinki, Finland
3 Instituto Nacional de Pediatría de Mexico, Mexico City, Mexico
4 National Taiwan University Hospital, Taipei, Taiwan
5 Wake Forest University/NC Baptist Medical Center, Winston-Salem, United States
6 Thomas Jefferson University, Philadelphia, United States
7 University Hospital Virgen de la Arrixaca, IMIB, CIBERER-ISCIII, University of Murcia (UMU), Murcia, Spain
8 Stadtspital Waid und Triemli, Zürich, Switzerland
9 Alnylam Pharmaceuticals, Cambridge, United States
10 St. Ivan Rilski U Hospital, Sofia, Bulgaria

Conference
UEG Week Virtual 2021

Citation
United European Gastroenterology Journal 2021; 9 (Supplement 8)


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